For many people I can just say that name and they know EXACTLY who I’m referring to! A little girl, two, to be exact, who doesn’t speak with her mouth but with her soul through her eyes.
Sophia has SMA.Â SMA is the leading genetic killer of children under the age of two. It is a terminal, degenerative disease, that takes away a childâ€™s ability to walk, stand, sit, eat, breathe and even swallow.
I recently had the extreme honor to meet Sophia and her parents at a charity benefit for her foundation
The event, “Zumba for a Cure” was held at
The day was filled with joy, laughter and HOPE! Hope, for a little girl and her family fighting for a cure so that no parent or child may have to go through what the Gaynor family has been through. TheÂ foundation was created to assist in funding for clinical research towards finding a cure for SMA and to offer support to families affected by this disease by providing advocacy, awareness, education and support. They help supply families affected by SMA not only with equipment not covered by insurance companies but a support network that they can turn to each other for comfort and assistance.
If you, or anyone you know would like to make a difference in a childs life, or are looking for an AMAZING organization to do charity work for please consider Sophia’s Cure !
Now, Onto the Event!
Awesome pins by Chee Chee Beans I’ve got mine on my shootsac strap!
And her Amazing parents!
The goodie bags were courtesy of the following vendors!
Chee Chee Beans
Now lets get this party started! If you are looking for a place to Zumba, THIS IS IT! I have never seen a Zumba class and this dance studio was transformed into a HOT Cuban nightclub pumping out the latest Reggaeton and Latin beats and complete with Disco ball and lights. This wasn’t exercise, this was a night out with the girls!